On October 26th, 2010, at 9 weeks old, Phoebe Rose was diagnosed with high risk MLL + Infantile Leukemia. On November 18th 2015 , she took her last breath. This is her story of hope and love in the face of cancer and despair. Phoebe always brought the joy and continues to inspire us to make a difference. It is best read from the beginning. Thank-you for visiting.

Thursday, July 14, 2011

Two more sleeps ...

Phoebe and I took another trip to the clinic today.  She had her blood tested and the dressing on her PICC line changed.  She cried a lot while she was in the hospital and was very happy to be back outside and heading home to her city house when the visit was over.  

The results of her blood work looks great.  Her platelets made another jump and are now a whopping 126, her hemoglobin also climbed a bit and is now 111.  Her white blood count is still holding steady and is 4.6.  It is such a relief to see her counts moving in the right direction. 

In other Phoebe news, she has expanded her vocabulary to now include "Mama" and something that closely resembles "Mae".  Upon hearing Phoebe say her name, Mae jumped around the room shouting Mae! Mae! Mae! and I think Phoebe may be afraid to say it again.  She is making more progress with her eating, avocados are still a favourite, but she has also tried and enjoyed watermelon, canteloupe, and various baby type purees.  She is yet to drink very much, if anything at all by mouth, but she will now let us put the cup to her mouth so I figure it is only a matter of time before she drinks from it.  She has also had many more opportunities to practice tummy time and yesterday she rolled over!  She has rolled in the past, she actually learned to roll over quite early, but after doing it a few times she was finished with it.  During transplant, Phoebe's developmental milestones were basically put on hold.  Worrying about whether or not she would crawl took a back seat to worrying about her health and survival.  Apart from social interaction with her many new friends, she did not do anything new and some skills regressed.  It is wonderful to now see her starting to catch up again and eager to try new things.  It won't be long before she is running to catch up with her big sister.

One more clinic visit, a lumbar puncture and two more sleeps before we say good-bye to Sick Kids and the big city, and it can't come soon enough.

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