On October 26th, 2010, at 9 weeks old, Phoebe Rose was diagnosed with high risk MLL + Infantile Leukemia. On November 18th 2015 , she took her last breath. This is her story of hope and love in the face of cancer and despair. Phoebe always brought the joy and continues to inspire us to make a difference. It is best read from the beginning. Thank-you for visiting.

Tuesday, November 8, 2011

Steps

We are still at home together in Memphis.  Still loving this time together.  Phoebe has a bone marrow aspiration tomorrow morning, the results of which we are hoping to know soon.  The anxious, nervous feeling that I have never really goes away, but we are choosing to enjoy each moment that we have together instead of focusing on the worry.  Phoebe is doing very well.  Her love of life and all things not related to the hospital is beautiful.  She lights up the room with her smile, and when her sister is in view, her excitement is uncontainable. Today, we took a drive around Memphis and as the wind blew in from the windows and through Phoebe and Mae's hair (Phoebe still has a few strands), their laughter and joy, and Mae's shouts of "the wind is in my hair!", were simply wonderful. 

Tonight, because the weather has been incredible and warm, we brought Phoebe to the playground and patio area here at Target House, had dinner, enjoyed the fresh air and time outside.  As Phoebe watched Mae and some new friends run and play, she squealed in delight.  While holding her she seemed to want to jump out of my arms and if she were able to run, I think she would have does so at that moment.  Instead of running, she stood with her feet planted firmly on the ground, and while we held her hands she took a few steps ... and then she took some more.

We are making strides, in as many ways as we can - a few steps forward each day.   




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