On October 26th, 2010, at 9 weeks old, Phoebe Rose was diagnosed with high risk MLL + Infantile Leukemia. On November 18th 2015 , she took her last breath. This is her story of hope and love in the face of cancer and despair. Phoebe always brought the joy and continues to inspire us to make a difference. It is best read from the beginning. Thank-you for visiting.

Saturday, December 3, 2011

Small victories

Day +2 today.  Counting up and away from all things cancer.  Phoebe is having a better day.  She had a good and restful sleep last night, interupted only once by a very high temperature.  Her oxygen levels remained normal, her heartrate when she wasn't febrile was normal, and she even gave her daddy a few laughs.  Yesterday at this time, the doctors were planning to move Phoebe to the ICU, thankfully she turned a corner before that became a reality.  We have come a long way in a short time. 

The next few days and weeks will be filled with much of the same waiting and watching that we have become accustomed to.  Waiting for signs of engraftment - of Phoebe's body's ability to make white blood cells, and watching for side effects from the transplant.  Because Phoebe is more stable today, the doctors are starting to wean her off of the steroids in the hopes that her body will slowly adjust.  This morning they commented that they are happy with how she is doing, and they are hopeful.  Phoebe's last pre-transplant chimerism test showed 100% donor cells, so she is still in a deep remission.  The stem cells that she received also contained a lot of T-cells, our nurse said that it is one of the largest amounts they have given, which will hopefully help to rid her body of any stubborn Leukemia cells. 

Phoebe is tired today and resting a lot.  Her body has been through so much and she is doing exactly what she needs to do to get better.  We will continue to move forward and to focus on the small victories that each day brings.  We are not in the ICU, Phoebe is stable, she is no longer on the monitor, and everyday that passes is another day that she is closer to being cured. 

No comments:

Post a Comment