On October 26th, 2010, at 9 weeks old, Phoebe Rose was diagnosed with high risk MLL + Infantile Leukemia. On November 18th 2015 , she took her last breath. This is her story of hope and love in the face of cancer and despair. Phoebe always brought the joy and continues to inspire us to make a difference. It is best read from the beginning. Thank-you for visiting.

Saturday, July 28, 2012

Life at home


This day, one year ago, was probably one of the worst of my life.  Learning that Phoebe had relapsed, that all of the treatment she had received had been unsuccessful, that her cancer was back with a vengeance, and that now it would be even more difficult to treat and cure, was devastating.  However, knowing that this unfortunate anniversary has passed by without much agony or stress, and really without many thoughts is kind of wonderful.  It is not an anniversary that I think I will choose to remember.

Today Phoebe is 240 days post transplant, she is loving her new life and instead on focusing on this day last year, I will focus on today and all we have been up to.  On life.

And so here are a few shots of all that Phoebe and Mae have been doing since she has been home.  She has been having fun. 

We have been hanging out at airports, watching planes and taking off to not so far destinations
 To Memphis for check ups and fun at St. Jude
Spending time at home

 Loving new found freedom, life without a central line and getting dirty ...

 
"The pool"

 
 Cruising in the 'hood ...

 
 ... with a baby in tow.  

 Blowing kisses


Visiting lovely small towns, and sitting in extra large chairs.  Just for fun.  

 An unexpected trip to the splash pad - no time to change out of jeans.
More splash pad fun
Walking ...
Cuddling
Growing up


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