On October 26th, 2010, at 9 weeks old, Phoebe Rose was diagnosed with high risk MLL + Infantile Leukemia. On November 18th 2015 , she took her last breath. This is her story of hope and love in the face of cancer and despair. Phoebe always brought the joy and continues to inspire us to make a difference. It is best read from the beginning. Thank-you for visiting.

Wednesday, November 18, 2015

Our sweet Phoebe Rose took her last breath this morning in the ICU at St.Jude. We never made it home with her, but in many ways her beautiful spirit will always be home with us. We are broken, so broken, and just miss her so much. We Love you Phoebe Rose.


25 comments:

  1. I am so sorry to hear if your heartbreaking loss...my thoughts and prayers are with your family at this sad time <3
    Lindsay Maahs

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  2. Jenny, Mae and family I am so sorry for your loss.

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  3. I have recently begun visiting here to read about your incredible child. I am so sorry for your loss. Take comfort in knowing that the love and devotion you have for her was clearly seen in each and every post you made. What an inspiring family you have been in so many ways. Take care of each other.

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  4. I've never met Phoebe but I've followed her story here for a long time and I am crying while I stand cooking at my stove, remembering her incredibly bright spirit and courage. I am just so sorry for your loss. The world will be dimmer without her in it and I promise she will be remembered. Sending all light and love.

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  5. I too, am so very sorry to hear this terrible news. I hope you find some comfort in the incredible years you had together. Phoebe will live on through the three of you, and the many many lives she touched. Reading your blog I was always so blown away by the depth of your love for each other and your ability to find joy and appreciation even in the hardest moments. It will be so so hard, but you will find that joy again. The memories of Phoebe will always be with you. Much love. Sara

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  6. Oh Sweet Phoebe, fly high little angel!

    I will be praying for your heartbroken mommy, daddy and sissy, as they try to find their way without you.

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  7. I'm so very sorry to hear this about her. I won't say my name , but you know who I am because I came to see you last Thursday night at the hospital.. My heart breaks for you guys , but glad I had a part in caring for her and meeting such awesome parents like you guys. You guys are the strongest most kind parents I've ever met and not once did you guys get upset with us while having to wait to get meds for her.. I loved her spunky personality because I knew she was going to growl at me and dad would have to take the vitals lol. May is a beautiful flower child that was always was by Phoebes side .. Ours thoughts and prayers are with your family and may GOD Bless your family. My work crew will miss seeing you guys day In and day out. Take care and may you guys have peace in your heart.

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  8. <3 You have been so brave writing this blog. I don't know you but have been at fundraisers and following your blog and keeping your family in our thoughts. Our hearts go out to you.

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  9. Like so many others, I've never met you or your family. I came across your blog a few years ago by chance and was instantly and continually touched by the love, hope and tenderness you shared as you wrote about your family and especially about your sweet and fiesty Pheobe. You have reminded me on so many occasions to be greatful for little moments. I wish for nothing but peace for your whole family and hope in time you find it. Thinking about you and especially Pheobe.

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  10. I have been reading your blog for a few years, and I am so very very sad to hear of your loss of Phoebe. Thoughts and prayers are with your family as you deal with this terrible loss. Especially thinking of dear sweet Mae, losing her baby sister.

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  11. I don't know you family except through Anne-Marie Bouchard but I wanted to send you my deepest condolences. As a parent I can only imagine your heartbreak. I am so sorry. Phoebe touched so many lives with her story. I pray you can find the strength to get through this. My prayers also go out to your other little girl Mae who has lost her sister.
    - Lauren Eaves

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  12. My deepest condolences on your loss. I don't know your family, but I started following your blog over a year ago and every week I would check it, holding my breath, and praying Phoebe was getting better. My heart is broken to read this last update. I am so sorry for your family and your sweet little girl. - Brooke Bryce

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  13. My deepest condolences on your loss. I, too, have been checking your blog on a weekly basis and have had my fingers crossed for good news. Please know that Phoebe had an impact on many people during her short life - what incredible strength and courage! You and your family are in my thoughts. Susan

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  14. I have followed your family's story through mutual friends on Facebook and was absolutely heartbroken for all of you to hear this news. I can't even imagine the grief of losing a child and sister. Phoebe's strength and determination to make it past the 5 year mark are a testament to her and the love and strength from your family. You were so brave to share your story with the world and raise awareness for this devastating disease. My thoughts and prayers are with your family as you grieve her loss. Lean on the support of your friends, family and community you have created through this journey. Phoebe was an inspiring girl and will live on in all of our hearts.

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  16. Oh Sweet Phoebe: fly fly fly on those swings, run with the wind, and dance your little heart out. I am glad you're not hurting anymore but I'm sad you are gone from us - if only we could have found your cure, and gotten rid of all your "bad" cells. You deserved it so much. And your mom, dad, and Miss Mae deserve it too. Sending SO MUCH LOVE to your little family in Ottawa, and to you in the clouds.

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  17. I hope one day you are too, Jenny, but as I read all these messages on here and on Facebook I'm comforted to know that Phoebe reached out through the ether and touched oh so many lives. We have all followed her journey through you for such a long time. We all feel like we were there with you, and like we are with you now.
    She is a part of every single one of us, and while I can't speak for everyone, I'm sure going to try to live a little more and a little better and a little brighter with Phoebe on my mind and in my heart.
    So so much love to you. Always. -Minna <3

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  18. I am so very sorry for your loss. I can't imagine the pain you must be experiencing, but know that Phoebe's life touched many many people - including me, who you have never met. Take good care of yourselves.

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  20. Your family is in my thoughts and prayers. I don't know you, but Phoebe has touched my heart through following your blog. I am so sorry for your loss

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  22. Though we have never met, this story of abounding love, unwavering hope and incredible strength of spirit captured my heart years ago. I held my breath every time I saw a new post on your blog. Tears filled my eyes countless times while reading your words and seeing photos of your beautiful little warrior, Phoebe Rose. My heart aches for all of you. There are no words. We will make a donation in Phoebe's honour. I am so so sorry.

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  23. Sending you all love, strength and support! My heart has been forever touched by your sweet angel! Sending my prayers to all of you.
    Jenny, please don't stop writing!

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  24. Sending you all love, strength and support! My heart has been forever touched by your sweet angel! Sending my prayers to all of you.
    Jenny, please don't stop writing!

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  25. We've never met but I worked with your mom at alterna. I have followed your blog for many years now. Having two daughters of my own, it breaks my heart to read that Your precious daughter has passed away. Sincere condolences.

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