On October 26th, 2010, at 9 weeks old, Phoebe Rose was diagnosed with high risk MLL + Infantile Leukemia. On November 18th 2015 , she took her last breath. This is her story of hope and love in the face of cancer and despair. Phoebe always brought the joy and continues to inspire us to make a difference. It is best read from the beginning. Thank-you for visiting.

Wednesday, November 23, 2016

Vote for Phoebe Rose Rocks

This blog, Phoebe's blog as we like to call it, has been nominated in Healthline's best health blog of 2016 contest! We are honoured to be recognized in this way and see it as a great way to raise childhood cancer awareness, forward the Phoebe Rose Rocks Foundation, share Phoebe's story and continue her legacy of hope.

You can vote by clicking here  and searching Phoebe Rose Rocks. You will need to enter your email address and if you are on a mobile device, scroll up to check the "I'm not a robot" box. Once you assure the folks at Healthline that you are not a robot, they will send a confirmation link to your email. Click the link in your email to confirm and you are done! You can vote once every 24 hours until December 12th. First prize is $1000!

I started writing or "blogging" almost 6 years ago as a way to update friends and family on Phoebe's progress. We were about to leave for Toronto and Phoebe's first transplant and I had so many thoughts that I wanted to share. I was also sure that this transplant would be Phoebe's cure and I wanted this huge event in our lives documented. I imagined Mae and Phoebe, who were 1 and 2 years old at the time, reading it when they were older, but then transplant failed and our fight began in ways that we hadn't experienced before. We became advocates, Jon and I who are both very shy, found our voices in all of this, we fought for treatment, we struggled to be heard, we pleaded for a chance, we picked up our lives and moved, we spoke up for Phoebe and for others. Our eyes were opened to the lack of funding and new treatments for childhood cancers and we started shouting from the rooftops. 

We would have done anything and gone anywhere if it promised to help keep Phoebe with us. 

This blog became a platform that allowed us to share what life is like for a family like ours and so we shared everything. Our hearts and souls. Our experiences as parents of a child with cancer, first with a terrible prognosis, and then with no cure. Our experiences with the health care system. Our fears, triumphs, joy, sadness, Mae and Phoebe's milestones, and now our grief - all make up the posts on this page. 

Although it is incredibly difficult at times, it has been therapeutic for me to share and to write. I like to think I have honoured Phoebe's life and the beautiful way in which she lived in a small way by writing about her. I wish I wrote more.

At times I know it's hard to read and maybe I share too much, but now that Phoebe is gone, I am thankful to have it. I am thankful Mae will have this story to read when she is grown up and has questions about her little sister, Phoebe. I am grateful when I hear how Phoebe's life has touched and inspired others. I am grateful to hear her name. 

Please vote for us. Healthline is a social media platform that reaches millions of people each day - help us reach these people and raise childhood cancer awareness. 





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